Courteney Cox has used her platform to raise awareness of epidermolysis bullosa, an extremely rare and potentially fatal condition.
On her Instagram account, the Friends actress shared a tearjerking video from the organization EB Research Partnership, which is dedicated to treating and curing the disease.
A young boy can be seen in the video calling out. “It is an uncommon condition, and it occasionally aches,” Eli Meyer explained to the audience. “I want everyone to understand that even if someone does not resemble you, you should still greet them. If we can better understand one another, the world will be a better place.”
EB refers to a group of fatal hereditary diseases that affect the body’s skin. Patients are deficient in essential proteins that hold the skin’s two layers together, causing the skin to tear and blister. As a result, there may be permanent and excruciatingly painful wounds.
Courteney is adamant about the issue because her friend Brandon has the disease. “An uncommon and potentially fatal genetic condition known as epidermolysis bullosa (EB) affects many people, including my friend @bdog2k19,” she captioned the video.
Go to @ebmrf and @ebresearch to raise awareness and find a treatment for EB, or post a video of yourself waving with the hashtag #comesayhi!”
A large number of Courteney’s fans praised the actress for using her platform to support such a crucial cause, with one writing: “Your use of your platform for good is a true testament to who you are as a person. Fantastic,” and “He’s so cute, I’m so grateful you shared this” were written by others.
“I’m hoping that more people become aware of EB. Everyone must understand. Thank you for sharing.”
Courteney began working to raise awareness about EB more than ten years ago, and in 2015, she said that her friend’s baby was born with the disorder. “The child of a friend of mine has EB,” she said. “I’ve been a part of it since then.”
There is no known cure for this disease. Simply put, it’s a bad thing.” “You can’t help but feel bad for these kids,” she added. “We must raise awareness because the disease is uncommon.”