After his diagnosis of frontotemporal dementia, the actor’s family has been researching the disease.
Emma Heming Willis is researching frontotemporal dementia after her husband, Bruce Willis, was diagnosed with the disease.
Teepa Snow, a dementia care and education specialist posted a photo with the 44-year-old on Instagram. Emma thanked the Association for Frontotemporal Degeneration for the assistance she received while learning how to navigate Bruce’s condition.
“I’m glad for the opportunity to work with @teepasnows pac, who has assisted me in expanding my dementia care toolbox,” she added. “She’s a caring, sensitive, and skillful leader in this place who navigates herself with true empathy.”
“She’s a blessing. Visit her website via the link in my bio for a lot of caregiving material you might find valuable as well #dementiaawareness #ftdawarness #EndFTD #EveryFTDStoryCounts.”
“@emmahemingwillis has done an incredible job of providing the necessary assistance for Bruce as his abilities have evolved and creating a home, environment, and life that continues to offer him what he needs to live well,” Snow commented.
“Frontotemporal dementia is never simple, but with the correct programming and care, it is possible to continue living. Congratulations to Emma and their entire family for their tremendous effort and dedication. It’s simply amazing!”
Bruce, 67, was diagnosed with frontotemporal dementia earlier this month, and Emma stated that his condition has worsened since his family initially disclosed news of his aphasia diagnosis last year.
“Unfortunately, communication difficulties are only one indication of Bruce’s disease. “Although this is unpleasant, having a firm diagnosis is a comfort,” she remarked.
“Bruce always believed in utilizing his voice in the world to help others and to raise awareness about important causes both publicly and privately,” Emma said in her complete statement.”
“We believe in our hearts that if he could, he would respond by bringing global attention and a sense of connection to those who are also coping with this painful condition and how it affects so many individuals and their families.”
Frontotemporal dementia is an umbrella name for brain illnesses affecting the frontal and temporal lobes. This means that sections of these lobes shrink, which can cause speech problems, emotional problems, and personality changes.
Additional symptoms may include a loss of motor abilities, such as difficulty walking, swallowing, or muscle spasms. The symptoms tend to worsen over time.
People often begin to notice symptoms between 40 and 65, but it can affect people much earlier. It is the most frequent type of dementia in adults under 60.
Since his diagnosis, the Die Hard actor’s family — Emma, their children Mabel, 10, and Evelyn, 8, ex-wife Demi Moore, and their children Rumer Willis, 34, Scout Willis, 31, and Tallulah Willis, 29 — has been focused on helping him “live as full a life as possible,” according to a family statement.
“The goal for Bruce is to keep him busy. He has a full day of activities planned for him. “They make certain that his body and mind are exercised,” a family source recently noted.
“The insider added, “family is closer than ever,” added that Emma is making as many happy memories for Mabel and Evelyn as possible.
“She wants children to remember Bruce as a wonderful, entertaining father. She wishes for them to remember him fondly.”